What information we may collect
Personal information is collected at the following times:
- When you register to our Services or update your profile, we ask you to provide your name, occupation, specialty, office phone, email address and password. We collect this information and use it to verify that you are a professional healthcare provider to ensure that our network is comprised by trusted members from the medical community. If we are unable to verify your credentials from the information you provide at registration, you may be required to send us additional evidence to support your affiliation to an academic or medical institution or board certifications.
- When you set up or update your network profile, you have an option to provide additional information that will be linked to your account. You can add such information by updating your profile yourself, or importing such information from third party vendors. Providing such information is completely optional, but enables you to better identify yourself and communicate with your peers. All of the information that you voluntarily provide and choose to include in your profile, will be accessible to other members of our network.
- When you invite others to join our Services, you may enter their names and email addresses, which FDNA will use to send your invitation including a message that you write.
- When you contact customer support, we may collect information in order to, among other things, accurately categorize and respond to your inquiry and deliver appropriate service levels.
- When you use our mobile application to locate services near you, we collect your precise geolocation data.
In addition to the “personal information” we may collect, when using our Services, we may collect “non-personal information” about your use of our Services, including pages and screens that you view, your computer’s internet protocol (IP) addresses, your computer’s or mobile device operating system and/or browser type, the identity of your internet service provider, referring/exit pages, date/time stamp, and click-stream data (i.e., a list of pages or URLs visited). In some cases, this non-personal information may be collected automatically and stored in log files to help us analyze trends, administer the site, track users’ movements around the site, and gather demographic information about our user base as a whole. However, this information, when used together with cookies (see “cookies” below for more information) or if collected when you are logged-in, may be used to link or associate such information to your personally identifiable information.
Posts that contains Personal Health Information (“PHI”)
Consent to FDNA receiving and processing information about you
Rights to access, correct and eliminate information about you
You have a right to access, modify, correct and eliminate the data about you, which has been collected pursuant to your decision to become a User. If you update any of your information, we may keep a copy of the information which you originally provided to us in our archives for uses documented herein. We take your rights seriously and encourage you to use them if you deem this to be appropriate. You may exercise these rights by emailing firstname.lastname@example.org.
How we may use the information we collect
Our Service help medical professionals to search and reference genetic syndromes, maintain their personal search history archive and facilitate easy peer communication. The information you choose to provide on our Service is used to help you describe yourself to other Users. Other information, that does not personally identify you as an individual, is collected by FDNA from Users (such as, for example, patterns of utilization) and is exclusively owned by FDNA. This information can be utilized by FDNA in such manner as FDNA, in its sole discretion, deems appropriate.
FDNA’s communications to you
FDNA will communicate with you through email, through notices posted on our website or through other means available through our Service, including mobile alerts, push notifications, text and other forms of messaging. If we send any communications to you via the carrier service with which you have a mobile communications subscription or otherwise have access, you understand you will pay any service fees associated with any such access (including text messaging charges for messages to your mobile device). Our communications to you include emails which help us operate and improve our Services, respond to your comments and questions and provide customer service, provide and deliver products and services you request, send you related information, including confirmations, invoices, technical notices, updates, security alerts, and support and administrative messages, better understand you so that we may tailor messaging and services based on your interests, preferences, needs and specialties, send you information via email about products and services or new features, we or our selected partners offer.
Information provided to FDNA (or to third parties with whom it offers combined services) is also used to customize your experience on our Services. For example, you can build a personal search history archive and display them in the context of references to a new case.
Sharing information with third parties
We may provide data about the usage of our services with third party service providers with whom we contract to help us provide our Services. For example, we may work with vendors, consultants or other third parties to host and maintain our data and website properties, analyze our data, or provide marketing assistance. All contracted third parties must agree not to use your personal information other than to fulfill their responsibilities to us and are bound by confidentiality agreements with regard to their use of such information in accordance with applicable data protection and privacy regulations. We may provide aggregated anonymous data about the usage of our services to third parties for such purposes as we deem, in our sole discretion, to be appropriate, including to prospective investors in FDNA. We may segment our Users by occupation, specialty, geographic location or other similar information and provide information from your public profile as part of our Services and product offerings.
When you use the FDNA Service through our websites, newsletters, mobile apps or other medium, you may be presented with advertisements or opportunities to engage in informational programs consisting of sponsor-selected content. Examples of these programs include sponsored news alerts or branded or unbranded discussion groups. All sponsored programs will be labeled clearly as sponsored. When you choose to engage with a sponsored program, such as engaging with a commercial client’s sponsored news alert, we may provide our commercial clients with your identifiable information and information about the type of engagement (e.g., whether you viewed, interacted with or requested information about such promotional content).
Surveys and Polls
Communications to other users
Communications you initiate through FDNA, such as a colleague invitation sent to a non-User or posting a comment in any of our professional message boards, will list your name in the message.
In order to diffuse the information posted in our public message boards to a wider audience, we may, from time to time, collect your postings and group them together to use in a specific publication, print, electronic mailing or other public dissemination. At no point however will your name be revealed in any publication without your explicit permission. When your postings are used in this fashion, they may be edited to fit with the general content of the publication being prepared.
It is possible that we may need to disclose personal information when required by law, such as responses to civil or criminal subpoenas, or other requests by law enforcement personnel. We will disclose such information when we have a good-faith belief that it is necessary to comply with a court order, ongoing judicial proceeding, subpoena, or other legal process or request to FDNA brought in any country throughout the world, or to exercise our legal rights or defend against legal claims.
Disclosures to others
What choices you have for your information
Accessing and changing your account information
You can review the personal information you provided us and make any desired changes to the information you publish, or to the settings for your account, including your email and contact preferences, at any time by emailing us at email@example.com. You may also make these changes by updating your Profile on our website or mobile application. Please be aware that even after your request for a change is processed, FDNA may, for a time, retain residual information about you in its backup and/or archival copies of its database, as we deem necessary to comply with our legal obligations, resolve disputes, and enforce our agreements.
What are my opt-out rights?
You can stop all collection of information by FDNA easily by contacting firstname.lastname@example.org and requesting to opt out of certain Services.
However, FDNA will not allow you to opt out of any announcements and messages related to the implementation of this Policy and your obligations thereunder.
Closing Your Account
You can also close your account at any time. If you close your account, we will remove all of the information that you have provided to FDNA from our publicly viewable database, as well as any private information that you have stored with us. We may also retain certain data contributed by you if we believe it may be necessary to prevent fraud or future abuse, or for legitimate business purposes, such as analysis of aggregated, non-personally identifiable data, account recovery, or if required by law. We may also retain and use your information if necessary to provide the Services to other Users. For example, just as an email you may send to another person through an email service provider resides in that person’s inbox even after you delete it from your sent files or close your account, communications to other Users, as well as your contributions to professional message boards, may remain visible to others after you have closed your account. Similarly, other information you have shared with others, or that other Users have copied, may also remain visible. FDNA disclaims any liability in relation to the deletion or retention (subject to the terms herein) of information or any obligation not to delete the information, subject to applicable data protection and privacy regulations. FDNA does not control when search engines update their cache, which may contain certain public profile information that has since been removed from FDNA’s publicly viewable database.
To request that we close your account and remove your information from the FDNA website, please send your request to email@example.com. Please send your request using an email account that you have registered with FDNA under your name. You will receive a response within ten (10) business days of its receipt.
What your obligations are
As a User, you have certain obligations toward the other Users with whom you will be communicating. Certain of these obligations are imposed by applicable law and regulations, and others have become commonplace in user-friendly communities of like-minded members:
- You must not download or otherwise disseminate any information which may be deemed to be injurious, defamatory, violent, offensive, racist, sexist or xenophobic, or which may otherwise violate the purpose and spirit of FDNA and its community of Users.
- You must not provide information to FDNA and/or other Users which you believe might be injurious or detrimental to your person, professional or social status.
- You must use our public message boards for clinical, not commercial use. While we do allow selected client outreach for market research, these messages have a distinct format and channel-level opt-outs to protect our members. Those found soliciting, scamming, or spamming other members will be removed or suspended from the network at our sole discretion.
Any violation of these guidelines may lead to the restriction, suspension or termination of your account by FDNA, as we take these principles seriously and consider them to be the basis on which our Users adhere to the FDNA website and the services which it offers.
How we protect your information
Protecting your personal information is also your responsibility. We ask you to be responsible for safeguarding your passwords used to access our Services. You should not disclose your account information to any third party and should immediately notify us of any unauthorized use of your password.
EU Data Compliance
FDNA complies with current EU data directives in regards to collecting, processing, and transferring the personal data (as defined by the EU data directives) of its EU Users from the EU to non-EU areas, primarily the US and/or areas providing an adequate level of data protection according to the EU (i.e. Andorra, Argentina, Canada (to commercial organizations), Faeroe Islands, Guernsey, Israel, Isle of Man, Jersey, New Zealand, Switzerland and Uruguay). As necessary, FDNA uses “Standard Contract Clauses” (SCC), as determined by the EU data directives’ model clauses, to enter into agreements in the EU (with sites and/or third party vendors) to ensure compliance with applicable EU data protection and privacy regulations for its EU Users. If you have any questions or concerns, please send an email to firstname.lastname@example.org.
last update: June 30, 2017